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Weekend Drama

This weekend was our first wedding anniversary. While we are rather limited in celebration options, I had arranged to have a raid night off and we planned on having a lovely day together just enjoying the company. Things never quite seem to work out as we plan.

Mr Wench managed to have an accident at work on Thursday, hitting his head and cutting a deep gouge along his scalp. He’d been advised by the first aid team to just leave it as they didn’t think it would require stitching. On Friday morning, however, it was still bleeding so Mr Wench woke me up to get a second opinion on whether he needed to go to the hospital. I got up, took a quick look and confirmed that I thought a hospital visit would be necessary…and then collapsed on the floor.

I’m really not the sort of person that faints at the sight or blood or anything and I’d been checking on the progress of his head wound the day before. One of the symptoms I get with ME when under stress or particularly worn out is that my temperature can suddenly go up or down without warning. I also react badly to temperature rises (nothing to do with ME, just a bonus quirk) so after all the stress of keeping an eye on Mr Wench and just generally having been a little run down, I woke up, my temperature rose and I overheated. Annoyingly, I’d managed to collapse behind the bathroom door and while Mr Wench had seen the sudden colour drain from my face and checked my fall, I was now blocking the bathroom door shut and he couldn’t get out. Mr Wench is not just my husband, he’s also my carer. Having watched over me for so many years, he thankfully realised this was likely a temperature issue and covered me in cold damp towels and flannels until I started to be responsive again. After cooling down again, I was just exhausted and a bit bruised and he was able to head on to the hospital to get his head treated with medical glue.

Our anniversary celebrations were a little more quiet and subdued than we’d planned, but it reminded us that we have each other to lean on.

In World of Warcraft, I have done very little this week outside of raid time commitments. My auction sales and stockpiling are becoming more reserved as we approach patch day. I have stopped restocking PvP armours and am just selling off the stock I have left, as it will be mostly useless by patch day. Jewellery, enchants, gems and the like will still be useful so I cam still keeping them stocked. The rest of the time has been used to stockpile more materials. I have been focussing more on Magnificent Hides, Exotic Leather and Windwool Cloth this week as my supplies in each are rather low and I feel it will be impossible to have too much! Witht he increased amounts of each used for new daily coolowns, I suspect there may be an increase in demand leading to higher prices which would choke my supply line or force me to raise crafting prices.

Show Me The Money

215,118g

That’s down by just over 110k from last week but the increase in stored materials and supplies is huge. As I’ve done this over the course of a few weeks, I have been able to buy just the low priced items rather than paying much more when demand is higher. One more week until I start to see my finances going in the right direction again!

 

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How do you cope with being ill?

Today’s post is inspired by a friend that asked me a random question today.

How do you manage to have a life when you tell me that you are so ill?

For me there is a simple and short answer: because my day is prioritised around anything important.

The short answer though is really only understandable if you can see how a regular day is for me.  The long answer would involve all the hundreds of things each day that are done without even thinking anymore to make this happen.  I’ll try to show you what I mean.

I live in a small flat just outside London, UK.  The town I live in is quite small, stuck between two large towns.  The street our building is located on, is closer to the main high street, but tucked aside with its own private community garden and high walls that seem to prevent the rest of the world from intruding.  It’s rather quiet.  There is very little noise from traffic.  My neighbours are mostly elderly or rather private people and as such rather considerate in noise levels.  Why am I explaining this? One of the things that tires me out quicker than anything else is strong sensory input.  Loud noises, bright lights, strong smells and so on.  Our home is ideally situated to help reduce their effect on me.

The majority of my day is spent in our living room.  It is fairly small, so if I need to move about there are many pieces of furniture to rest against or grab hold of.  There is no noise to disturb me; no television in the background or music playing, no children playing. Even Mr Wench is asleep in our bedroom for the majority of the daytime as he works the night shift.  The curtains remain permanently drawn closed unless a specific reason requires me to open them.  The entire flat is a small cocoon of quiet and darkness.

I know this is not so for other families and that in most homes I could not do this.  However, most days I get to enjoy my comfortable, quiet shell that protects me from wasting energy.  At the weekends I am much more exhausted and that’s purely by the introduction of Mr Wench watching television in the background or needing lights on to be able to see things he is working on.  Visitors to our home require more light and inevitably bring more noise, so these have to be rationed into acceptable times. This is not normal behaviour obviously, but it has had to become normal for us.

Then we move to daily routine.  I have a collection of loose-fitting tops and jogging bottoms, along with some pyjamas that are all easy to pull on and off as well as comfortable to wear.  These are essential. They stop me wasting valuable energy choosing items to wear and fiddling with buttons, ties and zips.  Things like brushing my hair or teeth are done whilst sat on the closed seat of the toilet which enables me to rest the active arm on the cistern to take the weight off my arm muscles.  A bottle of water sits on my computer desk so that I do not have to get up just to get a drink.  A high stool stands in our kitchen so that I can sit whilst trying to wash up or prepare food…the list is endless.

To most people, meeting a friend for a quiet lunch is a simple thing.  For me, its something that requires several weeks of planning and much rest afterward, often more than one day’s rest.  Consider the activities and atmosphere I mentioned above.  Now consider how many of those things need be altered for lunch with a friend.  It is not just the energy required to get to the location, eat and chat with my friend and then return home.  The clothing has to be changed into more difficult things to wear in order to be presentable in public…perhaps even make-up may be involved.  There will be traffic noise and noise from the crowd around you, smells of food and exhausts, sunlight and lighting inside the lunch venue.

This weekend I travelled to a reunion to see friends I had not seen in about twenty years.  I could only stay for a few hours before I was struggling to hold my head upright, but it was worth every second.  Just being able to talk with people who have meant so much to me over the years and that I’d lost contact with was so important.  Despite taking the wheelchair and trying to make sure I did nothing else that day, I still was in pain and exhausted when I reached home again.  In fact, it took me a couple of days of little more than resting to be up to writing this.

So, why did I put myself through it?

It’s important to still feel that you have some semblance of a life, no matter how cut off you may feel from the rest of the world.  Those few hours sharing memories with people who I have loved for decades showed me that even if 20 years go by without seeing someone, it’s still possible to just carry on as if you had seen them the day before.  Thank you, girls. That was something truly special to me.

 
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Posted by on October 11, 2011 in Myalgic Encephalomyelitis

 

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